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Of Ice Buckets and Philanthropy (AKA The Revolution Will Not Be Funded)

AthenaAwakened

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Sep 17, 2003
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Right behind you so ... BOO!
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non-theist, anarcho-socialist
why should a sick person have to depend on LeBron James getting a bucket of ice water dumped on his head in order to have adequate funding for research that is necessary to effect a cure?

https://www.jacobinmag.com/2014/08/the-masters-pools/

We’ve been reduced to this reality by a combination of austerity politics and the growing non-profit industrial complex. Underneath their laudable aims and local successes, non-profits are beholden to the methods of funding which allow them to continue their work. It’s nearly impossible to challenge the unequal distribution of power and resources when your initiatives must be made palatable to ruling class philanthropists, whose wealth is a product of exploitation.

Crowd-funding feels like a solid alternative because it changes the class dynamics of traditional philanthropy, but it subjects recipients to the same capricious winds. Whether they’re aging robber barons or techie college freshmen, funders are attracted to shiny new projects with short-term objectives they can watch unfold in a five-minute Kickstarter video. Even a $5 donor wants a straight line between her cash and a positive outcome. That’s not always possible, or desirable.

Audre Lorde famously said that the master’s tools cannot dismantle the master’s house, and the non-profit industry is a textbook example. Their current structure all but eradicates any opportunity to pursue structural change in how resources are allocated, and encourages short-term thinking and zero-sum battles for funding. Long-term political goals, like combatting police violence or ending mass incarceration, are left twisting in the wind.

In their foundational essay collection The Revolution Will Not Be Funded, the Incite! Collective explain how non-profits were established as tax shelters for the richest individuals, which had the happy after-effect of funding their philanthropic projects and improving their public image. We need not interpret the elite’s motives entirely cynically in order to critique the system that by design perpetuates paternalism and prioritizes the interests of capitalists. In the collection, Ruth Gilmore cites Jennifer Wolch’s description of the non-profit industry as a “shadow state,” or network of organizations which privatize state functions like funding medical research or putting books in classrooms.

It bears noting that none of this is the fault of the ALS Association or any other non-profit. Rather, it is the status quo that many direct service and social justice organizations endure unnecessarily. With even a little bit of political will, it wouldn’t be hard to give ALS research enough money that we never have to get wet again. The government could give the National Institutes of Health $30 million every month for a year, and it still wouldn’t touch the $3.2 billion allocated to revamp the president’s helicopter fleet, Marine One — none of which resulted in building a single helicopter.

The issue is not what is available, but what is being prioritized. The ALS Ice Bucket Challenge has been successful not only because of the gimmicky videos, but because no one could reasonably object to funding ALS research. Why not channel that energy into a public funding system, siphoning higher taxes into these important causes? Why not go further and imagine more radical ways to transform medical research in the interests of ordinary people? We could rest assured that a bedrock of a just society is secure.
 
How many billions were donated after 9/11 in the US?

While ALS is an important cause, most causes are important. I don't like the idea of being pressured to give money to a cause because some people think it is chic all of a sudden. Heart disease is the number one killer, yet breast cancer has the most money donated, as if breast cancer is some sort of disease that doesn't have awareness to it. Meanwhile an absurd number of non-whites die needlessly from Malaria, something that is ridiculously cheap to treat.

I don't dump ice water on my head and tell someone else they need to donate money to Doctors without Borders. Sure, some children are starving so much that when they finally get access to food, they can't actually eat food because their body can't handle it, and have to be put on a fluid diet of special milk. Still don't dump water on my head and say you should pay to the cause.

Though it is special that celebrities got into it without actually requiring a celebrity being diagnosed with the disease to give a rat's ass about it, like Parkinson's.
 
Breast cancer is the most ridiculous. Gets pushed constantly, probably because, y'know, boobs are sexy. You don't often hear of brown ribbons for colon cancer or anything at all about testicular cancer.

Jimmy Higgins said:
Meanwhile an absurd number of non-whites die needlessly from Malaria

Why is it relevant that these victims are "non-white"? They are poor and starving. Isn't that enough? Must everything be about race on this forum?
 
Breast cancer is the most ridiculous. Gets pushed constantly, probably because, y'know, boobs are sexy. You don't often hear of brown ribbons for colon cancer or anything at all about testicular cancer.

Jimmy Higgins said:
Meanwhile an absurd number of non-whites die needlessly from Malaria

Why is it relevant that these victims are "non-white"? They are poor and starving. Isn't that enough?
Historically not. I believe the implicit point was that if the malaria victims were nice white Europeans, there would be more funding.
Must everything be about race on this forum?
No. Must people on this forum deny that race is factor when it is factor?
 
In my job as a banquet server, I work maybe 40 fundraising events a year. I often have a bad feeling about where the money is going compared to an ideal allocation. However, some of these charities do have low overhead and sensible plans for spending the money, so I can't be too cynical.
 
Getting back on point for just a minute...

I have several friends who have done this ... Thing...

And they are all great people, but I don't think any of them have questioned why they are doing it. Its just the next fad, this week's wild and crazy thing. What's to think about, you give money to good cause and you get to put a silly video of yourself on YouTube and maybe get to be famous.

ALS isn't silly and fame doesn't cure it. And what about cancer, and heart disease, and malaria and the other thousands of maladies that kill millions of us each year? What about comprehensive healthcare? Must the lives of millions be judged as worth trying to save on how cool the gimmick they use to grab the shrinking attention spans of the affluent classes?
 
Getting back on point for just a minute...

I have several friends who have done this ... Thing...

And they are all great people, but I don't think any of them have questioned why they are doing it. Its just the next fad, this week's wild and crazy thing. What's to think about, you give money to good cause and you get to put a silly video of yourself on YouTube and maybe get to be famous.

ALS isn't silly and fame doesn't cure it. And what about cancer, and heart disease, and malaria and the other thousands of maladies that kill millions of us each year? What about comprehensive healthcare? Must the lives of millions be judged as worth trying to save on how cool the gimmick they use to grab the shrinking attention spans of the affluent classes?

But if the government decided which to support it will still have the same issues. There is a finite amount of amount but a lot of problems to solve. Heart disease we know what the cause and cures are for it, but it's easier said than done. For breast cancer we know some of the causes but don't have any prevention yet.
 
Getting back on point for just a minute...

I have several friends who have done this ... Thing...

And they are all great people, but I don't think any of them have questioned why they are doing it. Its just the next fad, this week's wild and crazy thing. What's to think about, you give money to good cause and you get to put a silly video of yourself on YouTube and maybe get to be famous.

ALS isn't silly and fame doesn't cure it. And what about cancer, and heart disease, and malaria and the other thousands of maladies that kill millions of us each year? What about comprehensive healthcare? Must the lives of millions be judged as worth trying to save on how cool the gimmick they use to grab the shrinking attention spans of the affluent classes?

But if the government decided which to support it will still have the same issues. There is a finite amount of amount but a lot of problems to solve. Heart disease we know what the cause and cures are for it, but it's easier said than done. For breast cancer we know some of the causes but don't have any prevention yet.

did I mention the government? Let me check. No.
 
I think amajor reason why the ALS ice bucket challenge has been such a hit is not because it's a widespread fad but because it managed to become a fad among key demographic of celebrities and millionaires who can afford to donate, well, millions. You giving $50 and dousing yourself in ice cold water is pretty insignificant in comparison.
 
But if the government decided which to support it will still have the same issues. There is a finite amount of amount but a lot of problems to solve. Heart disease we know what the cause and cures are for it, but it's easier said than done. For breast cancer we know some of the causes but don't have any prevention yet.

did I mention the government? Let me check. No.

Why not mention the government? It is the chronic misappropriation of its funds that makes the funds for genuine social needs so damned "finite." One F-35 program less and we could have a greatly expanded public health and disease research program...and the rest of the world could breathe a little easier....maybe easy enough to cancel some of their weapons programs. 1.7 Trillion dollars....wow! That's a lot for a geopolitical toy designed for a bygone cold war.

Those ice buckets belong in Washington and should be dumped on a congress that ignores "the general welfare" of "we the people" and the Constitution in favor of funding tug of war for things like the F-35. There really is no good reason our government should not be heavily involved in promoting the public good...not subsidizing the oil industry and the banking monopolies. Our public interest investment in this country is paltry and miserly. That might be why we have ice buckets used as they are in the first place.
 
I think amajor reason why the ALS ice bucket challenge has been such a hit is not because it's a widespread fad but because it managed to become a fad among key demographic of celebrities and millionaires who can afford to donate, well, millions. You giving $50 and dousing yourself in ice cold water is pretty insignificant in comparison.
Nations where water resources are scarce... forget about refrigeration... must look in awe as people waste water in a stupid attempt to show how much they care (if they had the media to use Facebook and YouTube). Could have just written a check instead.

I'll be more interested in the Flesh Eating Bacteria Challenge to help support pancreatic cancer.
 
did I mention the government? Let me check. No.

How did you not mention the government? You want it to be funded through taxation, so who else would be deciding?

To hear the drug companies tell it, they are funding research all the time (with government subsidized research) so they need to recover that money the government spent for themselves with intellectual property rights and rob you blind for drugs your taxes are already involved in. Who else could be funding? Not the big drug companies...till the government taxes them appropriately for their undue profits and turns that around in research grants and the like.

There are capital restraints on the development of drugs to treat diseases like TB because that is a poor man's disease and there isn't enough profit in it. These are the so called "orphan drugs." Again, the problem is structural and divorced from the reality of public need. Lotsa luck with fad funding.
 
did I mention the government? Let me check. No.

How did you not mention the government? You want it to be funded through taxation, so who else would be deciding?

tbf Athena, you may not have mentioned the government but Jacobin did. But I agree with the Jacobin article so I'll encourage you not to shy away from being pro-government involvement.
 
How did you not mention the government? You want it to be funded through taxation, so who else would be deciding?

To hear the drug companies tell it, they are funding research all the time (with government subsidized research) so they need to recover that money the government spent for themselves with intellectual property rights and rob you blind for drugs your taxes are already involved in. Who else could be funding? Not the big drug companies...till the government taxes them appropriately for their undue profits and turns that around in research grants and the like.

There are capital restraints on the development of drugs to treat diseases like TB because that is a poor man's disease and there isn't enough profit in it. These are the so called "orphan drugs." Again, the problem is structural and divorced from the reality of public need. Lotsa luck with fad funding.

I fail to see the relevance of your response to what I posted. That seems to have the government be the one doing the deciding.
 
... TB because that is a poor man's disease and there isn't enough profit in it.

Same old thing. US is a democratic republic. That suggests votes are important. Last time I looked most people are poor people in the US. So why isn't government funding poor people's diseases? Maybe its because poor people don't vote? Maybe poor people should be taking advantage of their enfranchisement.*

Just sayin....

*"that's hard"
 
I am going to send a tweet to Justin Bieber urging him to start pushing the red hot coals bucket challenge to help cure affluenza. It'll be the next big thing.

- - - Updated - - -

... TB because that is a poor man's disease and there isn't enough profit in it.

Same old thing. US is a democratic republic. That suggests votes are important. Last time I looked most people are poor people in the US. So why isn't government funding poor people's diseases? Maybe its because poor people don't vote? Maybe poor people should be taking advantage of their enfranchisement.

Just sayin....

Or maybe it's because poor people don't send in campaign contributions because . . . you know . . . they're poor.
 
Or maybe it's because poor people don't send in campaign contributions because . . . you know . . . they're poor.

One doesn't have to contribute to vote. One only need be aware of one's interests and have knowledge of what and how one votes.

Both you and Tom Sawyer seem to think its all about money. Could it be you drank the KoolAid?
 
Or maybe it's because poor people don't send in campaign contributions because . . . you know . . . they're poor.

One doesn't have to contribute to vote. One only need be aware of one's interests and have knowledge of what and how one votes.

Both you and Tom Sawyer seem to think its all about money. Could it be you drank the KoolAid?

Maybe, or it could be we've read the studies that show if you contribute to politicians your issues are much more likely to get congressional action.
 
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